Today is my 9th day in the hospital and Elizabeth's third day of life. She is 26+6 weeks gestation right now. Tomorrow, I will be released and then our full NICU journey will begin as I juggle home and NICU.
I'm thrilled to report I have tiny amounts of milk for Elizabeth tonight!!! Yay. I cannot wait until my milk is fully in. She began receiving some donor milk yesterday to "prime her GI tract"... they gave her 1ml every three hours. Today that increased to 2ml. Hopefully in another day or two, I will have enough milk to meet those minimal demands. Since there isn't a whole lot I can do for our sweet baby at this time, milk is my obsession.
Elizabeth is doing amazingly well. She still has the noninvasive vent on- the Dr said this allows her to decide how much breathing work she does... she has a couple apnea spells each day- and rebounds on her own within 30 seconds. The Dr said he's not worried, but he's not the parent (in other words, its not worrisome from a medical stand point). They did increase her caffeine slightly to help reduce the occurrence of the apnea spells.
I was able to have our first kangaroo care time with Elizabeth today. We only got 10 minutes because her temp dropped a bit... tomorrow we will add overhead heat so we get more snuggles. I wish I could just snuggle her all day!
Elizabeth continues to amaze the Drs with her resilience. She isn't sick... despite having e.coli meningitis. She is wrapped up in God's mighty arms and doing well. She will have another lumbar puncture (spinal tap) on Saturday to check on the bacteria growth. We are praying that there will be no remaining bacteria to culture. We haven't been able to run Elizabeth's karyotype yet-- we don't want to compromise her by doing another draw when it won't change the course of her treatment right now. We can wait a few weeks until she is bigger before confirming Turner Syndrome.
Our God is good. Sweet Elizabeth you are so loved!
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